Parents Talking Type 1: Scott and Arden

By American Diabetes Association

We recently asked our Facebook and Twitter communities to send us their stories—specifically, what it’s like to be the parent of a child living with type 1 diabetes. Having received a lot of wonderful stories, we’re excited to present these favorites on the blog every week.

We hope you’re as inspired by these personal stories as we are, and that you’re willing to keep the conversation going. Tell us more in the comments!

Name: Scott and Arden (
Location: Central New Jersey

Arden, 11 years old, was diagnosed around her second birthday. No one else in the family has diabetes, but there are other varying endocrine issues with the women on my wife’s side.

My wife and I had children because we wanted to love and care for them, to help them to become happy and healthy adults. We certainly weren’t expecting that type 1 diabetes would be part of our lives as we planned a family. However, it’s here and the pressure, responsibility and burden of parenting with type 1 does not change our desire to be the parents that we imagined we were before Arden was born. We are living the life we have and living it as well as we can.

Arden is about to enter the sixth grade. She wears a Dexcom CGM (continuous glucose monitor) and I can see the blood glucose readings on my iPhone. Her A1C dropped over a point and a half a few years ago but afterwards we began to handle the school day as if we were together along with school staff. I talk about it on an episode of my Juicebox Podcast titled “Texting Diabetes.” I have worked extensively with the school staff over the years to build a good relationship. This time spent is invaluable.

My daughter’s type 1 diagnosis is, to date, the most terrible thing that has happened to our family. But we didn’t let it affect who we are at our core. Our goals and the way we go about our days, those things remain unchanged. I would do anything for diabetes not to exist, but living with and loving a person who has a chronic illness gives you a perspective that would take two lifetimes to fully understand. This perspective is a gift that will enhance your life in ways that you can’t imagine. It’s not a fair trade by any means, but please don’t let anger and sadness keep you from seeing it. It will carry you a long way.

My advice to other parents with newly diagnosed children would be to find a community. Also know that while living with type 1 diabetes never gets easier, you will get so much better at dealing with it that one day, much sooner than you can imagine right now, it will feel easy (on most days). Hang tough, gain experiences, pay attention to trends and stay fluid.

The American Diabetes Association’s Safe at School campaign is dedicated to making sure that all children with diabetes are medically safe at school and have the same educational opportunities as their peers. To learn more, visit


Chief Apostle Shelia Benjamin~Inusah

About Chief Apostle Shelia Benjamin~Inusah

About Apostle Shelia Benjamin~Inusah C.B. Helping Hands Ministries Founder/Overseer / Business owner / Nurse, Friend, Apostle Shelia Benjamin~Inusah, a small town country girl with a big heart. That big heart didn’t go unnoticed by God. At age 8; Apostle Shelia made the most important decision of her life. She decided to follow Christ. It wasn’t long before she heard the calling of God upon her life to reach the lost at any cost. To touch lives, one person at a time. By age 15 she was actively ministering to many in her community. From the young to the elderly, and even the dying; she has made it a priority to care for the souls of those in need. Today Apostle Shelia leads the C.B. Helping Hands Ministries team on a greater call. A call to reach the lost not just in our community but also around the world. C.B. Helping Hands Ministries and Apostle Shelia have become the vessel that God is using to bridge the gap between generations and touch the hearts of a lost, and dying world. Daily she ministers to the homeless, battered women, suicidal people and at risk youth among others. As a John Maxwell certified coach, and speaker she travels the world adding value to others. She is dedicated to sharing the good news of Jesus Christ and helping others see their true potential. With a never quit attitude and unwavering faith, she has been able to build C.B. Helping Hands Ministries and testify of God’s provisions and unfailing love. Making sure to always give God the honor and praise. She motivates young adults like none other. She has become a renown inspirational speaker like none other. She is real, she is alive, she is on fire and excited about transforming, and adding value to others.. She is new, real, and a breath of fresh air. Called, and anointed for such a time as this.
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